East of England Learning Improvement Network - Privacy Notice
**Privacy notice**
**Key facts**
**Who's in charge:** East of England Learning Improvement Network controls your personal information. Thiscovery provides the secure platform.
**What we do:** We use your information to let you take part in the community, help useful discussions, and drive our mission to enhance patient care through collaborative learning networks that enable healthcare professionals to share best practices, innovations, and expertise. Everything we do is aimed at making the community valuable and useful for you.
**Your control:** You decide what information to share in discussions and can use your data protection rights at any time. You're always in the driver's seat when it comes to your personal information.
**Data security:** Your data is hosted on Thiscovery's secure UK servers with extra technical protection. We handle everything according to strict data protection agreements, so you can take part with confidence.
**Questions?** Contact East of England Learning Improvement Network, **Karen Andrew (Senior Regional Improvement Manager) at [karen.andrew8@nhs.net](mailto:karen.andrew8@nhs.net)**, for data matters.
Contact [help@thiscovery.org](mailto:help@thiscovery.org) for technical problems.
**Who controls your information**
East of England Learning Improvement Network **is in charge of your personal information.** They decide how we collect, use and protect it. They also handle your data rights.
**Thiscovery provides the technical platform.** We host your community on secure UK servers. We only handle your data following East of England Learning Improvement Network instructions.
**What information we collect**
**To join the community, we need:**
- Your name and email address
- East of England Learning Improvement Network specific required fields e.g. your job role, organisation, location
**You can choose to add:**
- East of England Learning Improvement Network specific required fields e.g. your job role, organisation, location
**When you use the community, we collect:**
- Posts and comments you make
- Files you upload
- Events you attend
- Messages you send
- When you log in and which pages you visit
**Important note about health information**
This community discusses health and patient care topics. Some information you share might count as health data under UK law.
- By joining discussions, you agree that East of England Learning Improvement Network can handle any sensitive information you choose to share.
**Before sharing, think about:**
- Personal health experiences
- Information about family members
- Your political or religious views
- Details that could identify you or others
You control what you share.
**Why we can use your information**
- **For your membership:** You've agreed to join, and East of England Learning Improvement Network needs to run the community well.
**For community discussions:** East of England Learning Improvement Network has good business reasons to handle posts and activities to achieve the community's goals.
**Public task:** East of England Learning Improvement Network has a public duty to drive improvements in patient care. This community helps them do that job.
**How we protect your information**
**Technical security:**
- Secure UK-based AWS servers
- Cyber Security Essentials Plus certification
- Data scrambled when stored and moved
- Extra security checks when logging in
- Regular security watching
- Secure backup systems
**How we organise security:**
- Staff trained in data protection
- Strict access controls
- Strong agreements between East of England Learning Improvement Network and Thiscovery
- Regular security reviews
**Platform features:**
- Privacy settings you control
- Secure messaging
- Content checking tools
- Records of admin actions
**Important:** Sending information online is never completely secure. We do everything we can to protect your data once we have it.
**Who can see your information**
**Other community members can see:**
- Information you choose to make public in your profile
- Posts and comments you make in discussions
**Your private messages stay private** - only you and recipients can see them.
East of England Learning Improvement Network **can see all community data** to run the community. This includes your profile, posts, and activity data for East of England Learning Improvement Network purposes.
**Thiscovery technical team can see your data** to maintain the platform and provide support. This access is logged and controlled.
**We don't share your data with other organisations** unless:
- You give specific permission
- East of England Learning Improvement Network has a legal duty to share it
- It's needed for good community interests (with proper protection)
**How long we keep your information**
**Community membership data:** For the duration of your membership plus 2 years
**Community posts and discussions:** Permanently as part of the community knowledge base
**Technical logs:** Typically 12-24 months
**After these times:**
- We securely delete or make your data anonymous
- You can ask for earlier deletion (but some content might stay to keep discussions making sense)
- East of England Learning Improvement Network ill tell the community about any changes
**Your rights**
**You can:**
- Get a copy of your personal data
- Correct wrong information
- Ask us to delete your data
- Ask us to pause handling while we sort out problems
- Get your data in a format you can take elsewhere
- Object to certain types of handling
- Withdraw consent at any time
**To use these rights:** Contact **Karen Andrew (Senior Regional Improvement Manager) at [karen.andrew8@nhs.net](mailto:karen.andrew8@nhs.net)**
**For technical help:** Contact [help@thiscovery.org](mailto:help@thiscovery.org) We respond within 30 days. No charge unless requests are unreasonable.
**Technical details**
**Software:** Open-source HumHub platform
**Hosting:** Thiscovery's secure AWS servers in the UK
**Security:** Cyber Security Essentials Plus certified
**Data location:** All data stored in the UK
**Data processing agreement:** Thiscovery handles your data under a complete contract with East of England Learning Improvement Network that ensures:
- Handling only following East of England Learning Improvement Network’s clear instructions
- Proper security measures
- Help with your data rights
- Secure deletion when the agreement ends
- Regular checks to make sure we follow the rules
**If something goes wrong**
If there's a security problem affecting your data:
1. Thiscovery tell East of England Learning Improvement Network immediately (within 24 hours)
2. They check if you and the Information Commissioner need to know
3. If there's high risk to your rights, we inform you within 72 hours
4. We take immediate steps to reduce any impact and fix the problem
5. We provide guidance on protecting yourself if needed
We have clear steps and will be open if anything goes wrong.
**Complaints and more information**
**Data handling complaints:** East of England Learning Improvement Network, **Karen Andrew (Senior Regional Improvement Manager) at [karen.andrew8@nhs.net](mailto:karen.andrew8@nhs.net)**
**Technical problems:** [help@thiscovery.org](mailto:help@thiscovery.org)
**Independent complaints:** Information Commissioner's Office at ico.org.uk or 0303 123 1113
**Related information**
- **NHS England Information Governance:** [https://www.england.nhs.uk/ig/](https://www.england.nhs.uk/ig/)
- **NHS Digital (now NHS England) - Information Governance:** [https://digital.nhs.uk/about-nhs-digital/our-work/keeping-patient-data-safe/information-governance](https://digital.nhs.uk/about-nhs-digital/our-work/keeping-patient-data-safe/information-governance)
- Thiscovery's privacy policy: [https://www.thiscovery.org/privacy-policy](https://www.thiscovery.org/privacy-policy)
- Information Commissioner's Office: [https://ico.org.uk](https://ico.org.uk)